Effects of coping strategies on health-related quality of life of people with neuromuscular diseases

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dc.contributor.authorGarcía Urquiza, Irune
dc.contributor.authorRodríguez Bermejo, Alicia Aurora
dc.contributor.authorAngelini, Corrado
dc.contributor.authorGarcía Sanchoyerto, Maddalen
dc.contributor.authorEspinosa Blanco, Patricia
dc.contributor.authorMartínez, Óscar
dc.date.accessioned2025-08-19T11:17:04Z
dc.date.available2025-08-19T11:17:04Z
dc.date.issued2024-04-03
dc.date.updated2025-08-19T11:17:04Z
dc.description.abstractNeuromuscular diseases (NMD) cover a broad spectrum of different rare diagnoses in which the primary lesion is in the peripheral nervous system. The impairment caused by an NMD does not only interfere with physical status but also has a clear impact on health-related quality of life (HRQoL). It is therefore essential to know the coping style used by these patients. This study aims to analyze the coping strategies in a sample of people with NMD and how their coping style affects their HRQoL. This cross-sectional study included 61 adult patients diagnosed with a rare NMD. WHO-DAS II, SIP, SF-36, and COPE-60 instruments were administered. The results showed that people affected by NMDs tend to use more frequent coping strategies such as active planning, personal growth, and acceptance. In contrast, the least-used strategies were restraint, mental disengagement, venting, humor, and religion, which affected HRQoL negatively. Moreover, the degree of disability was a relevant variable, with an impact on HRQoL. Social support can be considered the main coping strategy that leads to an improvement in the psychosocial HRQoL (β = 503, p < 0.001). These findings are relevant to clinical practice, given the need to understand the coping variable to improve HRQoL.en
dc.identifier.citationGarcía, I., Rodríguez, A. A., Angelini, C., García-Sanchoyerto, M., Espinosa-Blanco, P., & Martínez, O. (2024). Effects of coping strategies on health-related quality of life of people with neuromuscular diseases. Muscles, 3(2), 110-120. https://doi.org/10.3390/MUSCLES3020011
dc.identifier.doi10.3390/MUSCLES3020011
dc.identifier.eissn2813-0413
dc.identifier.urihttps://hdl.handle.net/20.500.14454/3379
dc.language.isoeng
dc.publisherMultidisciplinary Digital Publishing Institute (MDPI)
dc.rights© 2024 by the authors
dc.subject.otherClinical practice
dc.subject.otherCoping strategies
dc.subject.otherDisability
dc.subject.otherHealth-related quality of life
dc.subject.otherNeuromuscular diseases
dc.subject.otherRare diseases
dc.titleEffects of coping strategies on health-related quality of life of people with neuromuscular diseasesen
dc.typejournal article
dcterms.accessRightsopen access
oaire.citation.endPage120
oaire.citation.issue2
oaire.citation.startPage110
oaire.citation.titleMuscles
oaire.citation.volume3
oaire.licenseConditionhttps://creativecommons.org/licenses/by/4.0/
oaire.versionVoR
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