Predictors of overload in parents of children with neuromuscular diseases

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dc.contributor.authorRodríguez Bermejo, Alicia Aurora
dc.contributor.authorGarcía Martín, Maitane
dc.contributor.authorMartínez, Óscar
dc.contributor.authorLópez Paz, Juan Francisco
dc.contributor.authorGarcía Urquiza, Irune
dc.contributor.authorPérez Núñez, Paula
dc.contributor.authorAmayra Caro, Imanol
dc.date.accessioned2025-03-26T14:04:01Z
dc.date.available2025-03-26T14:04:01Z
dc.date.issued2024
dc.date.updated2025-03-26T14:04:01Z
dc.description.abstractIntroduction: Parents of children with neuromuscular diseases experience multiple difficulties in their daily lives that affect their physical and psychological health. The risk factors for these health issues have not been sufficiently investigated. Therefore, the aim of this study was to analyze the potential predictors of overload in these parents, including QoL, somatic symptomatology, life satisfaction, psychological adjustment and certain sociodemographic variables. Methods: A cross-sectional research study was conducted among parents who are caregivers for children with NMD in Spain. A convenience sample of 110 parents who were contacted by associations and hospitals was used. Variables were evaluated using the sociodemographic questionnaire, CarerQol-7D, PHQ-15, Barthel Index, Psychological Adaptation Scale, Zarit Overload Scale and Satisfaction with Life Scale. Results: One of the most relevant findings of the present study is the identification of 3 overload groups (mild to moderate, moderate to severe, and severe overload) based on life satisfaction and somatic symptom scores within the predictive model of the discriminate analysis. Wilk’s lambda of the discriminant function was 0.568, χ2 (2, n = 55) = 8.815, p < 0.001. Discussion: This study presents a model that reveals the influence of unemployment, having a child with a severe level of dependency, the presence of somatic symptomatology and life satisfaction on caregiver overload. Likewise, the caregiver’s self-esteem could be a protective factor against overloaden
dc.description.sponsorshipThis work was supported by a Grant of the Education Department of the Basque Government (BOPV, 27th Juny 2019) (PRE_2019_1_0044)en
dc.identifier.citationRodríguez, García, Martínez, O., López-Paz, García, Pérez-Nuñez, & Amayra. (2024). Predictors of overload in parents of children with neuromuscular diseases. Frontiers in Neurology , 15. https://doi.org/10.3389/FNEUR.2024.1349501
dc.identifier.doi10.3389/FNEUR.2024.1349501
dc.identifier.eissn1664-2295
dc.identifier.urihttps://hdl.handle.net/20.500.14454/2575
dc.language.isoeng
dc.publisherFrontiers Media SA
dc.rights© 2024 Rodríguez, García, Martínez, López-Paz, García, Pérez-Nuñez and Amayra
dc.subject.otherCaregivers
dc.subject.otherLife satisfaction
dc.subject.otherNeuromuscular diseases
dc.subject.otherOverload
dc.subject.otherParents
dc.subject.otherSomatic symptomatology
dc.titlePredictors of overload in parents of children with neuromuscular diseasesen
dc.typejournal article
dcterms.accessRightsopen access
oaire.citation.titleFrontiers in Neurology
oaire.citation.volume15
oaire.licenseConditionhttps://creativecommons.org/licenses/by/4.0/
oaire.versionVoR
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