DeustoTeka Examinando por Autor "Al-Rashaida, Mohammad Ali Hussein"

Examinando por Autor "Al-Rashaida, Mohammad Ali Hussein"

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Comparative analysis of emotional facial expression recognition and empathy in children with prader-willi syndrome and autism spectrum disorder
(BioMed Central Ltd, 2024-12) Perosanz Hidalgo, Ane; Martínez, Óscar; Espinosa Blanco, Patricia; García Urquiza, Irune; Al-Rashaida, Mohammad Ali Hussein; López Paz, Juan Francisco
Background: Prader-Willi Syndrome (PWS) is a rare neurodevelopmental disorder that is often comorbid with Autism Spectrum Disorder (ASD). Due to the close association between these two conditions, and recognizing that Theory of Mind (ToM) is related to social behaviors in ASD, there is a growing interest in studying the reciprocity of social communication between these two groups. Method: The primary objective of this study was to compare how children (n = 45) with PWS (n = 15), ASD (n = 15), and a control group (n = 15) respond to emotion recognition of facial expressions and empathy, which are both concepts related to ToM. The study utilized two tools named FEEL and Deusto-e-Motion 1.0. We also evaluated the Working Memory index of the WISC-IV scale, the Social Perception domain of the NEPSY-II battery, and the SCQ in both clinical groups. Results: Our findings suggest that individuals with PWS exhibit lower accuracy in recognizing facial expressions and empathy compared to the control group. Both clinical groups exhibited a delayed reaction time compared to the control group. Children with PWS display difficulties in recognizing emotions of disgust and surprise. In terms of cognitive empathy, children with PWS showed a greater inclination to respond to disgust as compared to children with ASD. Conclusions: This study represents the initial stage in comprehending the emotional and empathetic abilities of children with PWS and ASD. The findings can provide valuable insights for developing future interventions.
Content and face validity in virtual reality with children: a validation in five steps+1 of a wheelchair basketball game
(Frontiers Media SA, 2024) Ceberio, Imanol; Al-Rashaida, Mohammad Ali Hussein; García Martín, Maitane; López Paz, Juan Francisco; Salgueiro, Monika; Passi, Nicole; Pavel, Humberto; Amayra Caro, Imanol
Objective: The present study is aimed to elaborate and determinate the content and face validity of a virtual reality program attending the perspective of children. This simulation is designed to promote empathy and understanding towards children with motor disabilities through adapted sport scenes. This study proposed a validation approach with six phases to assess technical and aesthetic aspects. Method: Sample: a) Content validity study, 20 children (11–18 years old) were recruited as lay and content experts, who assessed the properties of grade of realism and physical fidelity of wheelchair basketball scenarios. b) Face validity study, 395 children were recruited as lay experts and divided into two groups (7–9 years old and 10–12 years old), or into ten subgroups according to Age × Gender interaction. The face validity sample assessed the psychological fidelity and the presence of wheelchair basketball scenarios. Instruments: Virtual Reality Content Validity Questionnaire, GAMEX questionnaire and Simulator Sickness Questionnaire (SSQ). Results: The content validity study showed preference for technical aspects (music, colors and degree of realism). Therefore, modifications in the design were made. In the content validity study, the high agreement level was influenced by previous sport experiences. In the face validity study, the cognitive development of children determined the differences in agreement levels in some virtual properties (absorption and cybersickness). In this sixth step, the ages 7–8 years versus 10–11 years showed significant differences in validity. The study also criticized the face validity cut-offs often used in adult-focused research, emphasizing the need to adapt them for children´s developmental stages. Conclusion: This study proposes a sixth step not traditionally included in content and face validity processes, specially focusing on the child user. The suitability of content and scenes should follow the same principles of standardization as other methodologies, such as psychometric tests, considering age and gender.
Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers
(BioMed Central Ltd, 2020-10-19) Berrocoso Cascallana, Sarah; Amayra Caro, Imanol; Lázaro Pérez, Esther; Martínez, Óscar; López Paz, Juan Francisco; García Martín, Maitane; Pérez Álvarez, Manuel; Al-Rashaida, Mohammad Ali Hussein; Rodríguez Bermejo, Alicia Aurora; Luna Ovalle, Paula; Pérez Núñez, Paula; Blanco, Raquel; Nevado, Julián
Background: Wolf-Hirschhorn Syndrome (WHS) is a rare, congenital disease characterized by a distinctive facial phenotype, seizures, intellectual disability and developmental delay, and pre and postnatal growth requiring lifelong care. The psychosocial status of the family caregivers of children diagnosed with WHS is unknown. This study aims to characterize the sociodemographic and psychosocial profile of WHS caregivers and analyze how these variables impact their quality of life (QoL) and well-being. Results: The sociodemographic and clinical profile of 22 Spanish caregivers of children with WHS and the characteristics of those affected have been described. Significant relationships were found between sociodemographic and psychosocial characteristics among caregivers. The impact on the parents’ QoL and negative relationship with the symptomatology were assessed. The use of engagement strategies such as problem focused coping was associated with improved psychological QoL and social support. Conclusions: WHS caregivers share similarities in their profile and needs with caregivers of children with other rare diseases. Pychosocial support groups involving parents caring for children with the same disease could improve caregivers’ well-being and QoL by strengthening their social support network and using positive coping styles.
Diseases costs and impact of the caring role on informal carers of children with neuromuscular disease
(MDPI AG, 2021-03-15) Rodríguez Bermejo, Alicia Aurora ; Martinez Gutierrez, Oscar ; Amayra Caro, Imanol ; López Paz, Juan Francisco; Al-Rashaida, Mohammad Ali Hussein ; Lázaro Pérez, Esther; Caballero, Patricia ; Pérez Álvarez, Manuel ; Berrocoso Cascallana, Sarah; García Martín, Maitane; Luna Ovalle, Paula ; Pérez Núñez, Paula ; Passi, Nicole
This study aims to evaluate the costs of informal care for children with neuromuscular disease and evaluate how physical and psychological health is associated with socio-demographic variables. A cross sectional design was used with a convenience sample of 110 carers that participated in this study. Participants were recruited from Spanish hospitals and rare diseases organizations. Economic costs and sociodemographic aspects were assessed using the economic costs questionnaire and the sociodemographic questionnaire. Physical and psychological health was evaluated using the CarerQol-7D, PHQ-15, Barthel Index, Zarit Overload Scale and Satisfaction with Life Scale. Carers of children with neuromuscular disease spent a large percentage of their annual income in physical therapy, psychological care and speech therapy. Informal costs differed according to the degree of dependency of the child. These were higher in those caregivers whose child under their care presented low functional independence. The loss of work productivity was related to marital status, use of professional services and the child’s dependency. Finally, carers who were female, single or separated and without a job showed worse physical and psychological health. The results highlighted that carers have to face a number of high costs because of the non-existence of social protection and due to the child’s diagnosis.
Effects of teleassistance on the quality of life of people with rare neuromuscular diseases according to their degree of disability
(Frontiers Media S.A., 2021-03) Martínez, Óscar; Amayra Caro, Imanol; López Paz, Juan Francisco; Lázaro Pérez, Esther; Caballero, Patricia; García Urquiza, Irune; Rodríguez Bermejo, Alicia Aurora; García Martín, Maitane; Luna Ovalle, Paula; Pérez Núñez, Paula; Barrera, Jaume; Passi, Nicole; Berrocoso Cascallana, Sarah; Pérez Álvarez, Manuel; Al-Rashaida, Mohammad Ali Hussein
Rare neuromuscular diseases (RNMDs) are a group of pathologies characterized by a progressive loss of muscular strength, atrophy, fatigue, and other muscle-related symptoms, which affect quality of life (QoL) levels. The low prevalence, high geographical dispersion and disability of these individuals involve difficulties in accessing health and social care services. Teleassistance is presented as a useful tool to perform psychosocial interventions in these situations. The main aim of this research is to assess the effects of a teleassistance psychosocial program on the QoL levels of people with RNMDs who have different levels of disability. A sample of 73 participants was divided into an experimental group (n = 40), which participated in the intervention, and a control wait list group (n = 33). QoL was evaluated through the SIP and the SF-36, and disability through the WHO-DAS II. The participants with a moderate to severe level of disability were those who most benefited from the intervention. The results also revealed that the psychosocial teleassistance program was suitable to improve physical and psychosocial aspects of people suffering from a rare neuromuscular disease with a moderate level of disability, but just psychosocial aspects in those with a severe level of disability.
Intrusion errors during verbal fluency task in amyotrophic lateral sclerosis
(Public Library of Science, 2020-05-29) Pérez Álvarez, Manuel; Amayra Caro, Imanol; Lázaro Pérez, Esther; García Martín, Maitane; Martínez, Óscar; Caballero, Patricia; Berrocoso Cascallana, Sarah; López Paz, Juan Francisco; Al-Rashaida, Mohammad Ali Hussein; Rodríguez Bermejo, Alicia Aurora; Luna Ovalle, Paula; Varona, Luis
Background Numerous studies have noted the presence of a dysexecutive component of the ALS-FTD. The most widely replicated result refers to the significantly reduced verbal fluency of ALS patients when compared to healthy people. As ALS patients have motor alterations that interfere with production, qualitative studies have the advantage of being independent of the degree of motor disability and revealing patients' cognitive state. This study examined the production differences between 42 ALS patients who presented with different degrees of dementia and motor impairment and 42 healthy people. Production processes were studied by extending the administration time of a letter fluency task to 2 minutes for the phonemic verbal fluency (PVF) and semantic verbal fluency (SVF) categories. This ensured that the qualitative aspects of verbal fluency were addressed, paying special attention to the new perseverations and intrusions, as well as any clinical correlates that may exist. Results The ALS patients produced a significantly lower number of responses in PVF (p = .017) and SVF (p = .008). The rest of the indicators for frontal lobe alteration also suggested the existence of a dysfunction. The most remarkable results were the number of intrusions on the PVF task, which was much higher in the ALS group (p = .002). However, the number of perseverations did not differ significantly. Conclusions This study highlights the value of intrusions in addressing cognitive deterioration in ALS patients. This deterioration seems to be independent of the degree of motor impairment and of behavioural alterations. Therefore, the value of the intromissions on the verbal fluency task was highlighted as an indicator of a new cognitive alteration, which can be easily evaluated, even retrospectively.
Music therapy and Sanfilippo syndrome: an analysis of psychological and physiological variables of three case studies
(BioMed Central Ltd, 2021-11-20) Pérez Núñez, Paula; Lázaro Pérez, Esther ; Amayra Caro, Imanol ; López Paz, Juan Francisco; Caballero, Patricia; Martinez Gutierrez, Oscar; Pérez, Manuel; Berrocoso Cascallana, Sarah; Al-Rashaida, Mohammad Ali Hussein; García Martín, Maitane; Rodríguez Bermejo, Alicia Aurora; Luna Ovalle, Paula
Introduction: Mucopolysaccharidosis type III (MPS III) or Sanfilippo syndrome is a neurodegenerative disease caused by the accumulation of mucopolysaccharides in the body. As the symptoms are wide ranging, it is a challenge to provide a diagnosis and psychological treatment for affected children. Method: The main objective of this study was to describe a form of music therapy treatment applied to three children diagnosed with MPS III. The psychological variables were evaluated by an ad hoc observation recording template, and the physiological variables were measured with a digital meter before and after each session. The perception of the parents was also considered through a semi-structured interview. Results: An improvement in the psychological variables was shown in all cases. Changes in the physiological variables were also noted, although they varied according to each child. The parents report some benefit of music therapy and they share difficulty in assessing the extent of benefits of the music therapy. Discussion: Findings indicate that music therapy can be a useful form of treatment with multiple benefits for children with conditions such as MPS III or similar conditions. However, further research is needed in this area and in the development of specific ways of evaluating music therapy.
The role of associations in reducing the emotional and financial impact on parents caring for children with Duchenne Muscular Dystrophy: a cross-cultural study
(MDPI, 2022-09-22) Rodríguez Bermejo, Alicia Aurora ; Amayra Caro, Imanol ; López Paz, Juan Francisco; Martínez, Óscar ; García Martín, Maitane ; Salgueiro, Monika ; Al-Rashaida, Mohammad Ali Hussein; Luna Ovalle, Paula ; Pérez Núñez, Paula ; Passi, Nicole ; García Urquiza, Irune; Ortega, Javiera
Caregivers’ emotions and finances are affected by the deterioration of functional capacity of patients with Duchenne muscular dystrophy (DMD), both in Mexico and Spain. Patient associations may reduce this impact on caregivers. This study aims to study the role of two models of associations, inspired by two different cultural models, in how the services they provide can help decrease the emotional and financial impact on the caregivers of children with DMD. The sample consisted of 34 caregivers from Mexico and 40 from Spain recruited from Spanish hospitals and rare disease organizations in Spain and Mexico. The instruments used consisted of a sociodemographic and socioeconomic questionnaire, the CarerQol-7D, the PHQ-15, the Zarit Caregiver’s Burden Scale and the SWLS. The results showed that caregivers in Mexico are in better physical and psychological health than caregivers in Spain. They also receive more subsidies than those in Spain. Caregivers in Mexico have a greater well-being and are less affected by the economic impact of the disease due to the associations’ day-to-day work and the fact that they generate a network of health services that they make available to the patient free of charge. These differences may also be attributable to cultural issues and to the fact that Mexico has a deeply established culture of support.
Social cognition in Chiari Malformation Type I: a preliminary characterization
(Springer, 2020-06) García Martín, Maitane; Amayra Caro, Imanol; López Paz, Juan Francisco; Martínez, Óscar; Lázaro Pérez, Esther; Pérez Álvarez, Manuel; Berrocoso Cascallana, Sarah; Al-Rashaida, Mohammad Ali Hussein; Infante, Jon
Chiari malformation type I (CM-I) is a neurological disorder in which cerebellar tonsils are herniated through the foramen magnum into the spinal canal. A wide spectrum of cognitive deficits underlying this pathology has been reported, but the literature about social cognition is insufficient. Clinical research has pointed out the cerebellar role in Theory of Mind (ToM), indicating that there are several disorders with cerebellar pathology that reveal a poorer performance in social cognition tasks. The main purpose of this study is to compare the performance on ToM tasks between CM-I patients and healthy controls. The protocol includes Faux Pas test, Happé’s Strange Stories test, Ice-Cream Van task, the FEEL test, and the Word Accentuation Test. In order to eliminate the possible influence of covariables, physical pain and anxious-depressive symptomatology have been controlled for. According to the results, CM-I patients performed worse than matched healthy controls on ToM tasks, except for facial emotion recognition. These differences remained even after controlling for the neuropsychiatric variables and physical pain. Thus, it can be suggested that patients with CM-I are impaired in their social skills related to their performance on ToM tasks. These findings can be considered to be a preliminary approach to the specific study of social cognition in relation to CM-I since it is similar to other cerebellar pathologies and to previous literature on the cerebellum’s role in social cognition
The extent of applying international standards on vocational rehabilitation centers among people with disabilities in the Basque Country, Spain
(Universidad de Deusto, 2018-11-23) Al-Rashaida, Mohammad Ali Hussein; López Paz, Juan Francisco; Facultad de Psicología y Educación; Psicología
As international vocational rehabilitation (VR) standards are developed to promote the rights of people with disabilities (PWDs) in training, employment, and integration, instruments are needed to evaluate the effectiveness of VR centers according to international norms and based on the perceptions of PWDs. This study aimed to investigate PWDs and managers’ perceptions regarding the extent of application of international standards issued by the Council of Europe (COE) and International Labour Organization (ILO) in VR centers in the Basque country, Spain. This study also described the current situation and examined the opinions of PWDs with regards to the VR services provided for them. Data were collected in two phases; the first phase includes two stages: (1) an open-ended face-to-face interview with the 11 Basque VR associations’ managers; and (2) an interview questionnaire was administered to 136 PWDs. The second phase included creating a valid and reliable instrument to measure PWDs’ perceptions regarding the extent of application of international standards. The instrument was translated from English to Spanish and the inter-rater reliability of an expert panel survey and interviews with VR managers were used to assess content validity. For the Spanish version of the instrument, internal consistency reliability and factor analysis were examined with 186 PWDs in five VR centers in the Basque country. Results showed that, although PWDs perceive VR and employment services as advanced and beneficial, there is a need to provide additional courses about work skills. Results also revealed four major themes to describe current situation of the VR program in the Basque region: (a) goals of the VR program, (b) vision and mission of VR centers, (c) eligibility conditions for VR services, and (d) VR services provided for PWDs. The instrument appears to have good validity and reliability but requires further validation. Support is provided for its use in both English and Spanish. In addition, results indicated the degree of application is high in whole research instrument or standards based on perceptions of managers and PWDs. The results also indicated there is a significant difference according to: (a) level of education of PWDs for all domains or standards; (b) status of disability in the degree of applicability of philosophy or aims of VR association (c) level of education of managers for all domains or standards, except for job related services; (d) gender of managers only in the degree of applicability of VR guidance standards; (e) work experience of managers only in job related services and vocational guidance standards; (f) the type of respondents (managers and PWDs) in the all standards. The implications for VR practice and suggestions for future research are provided.
Using a virtual serious game (Deusto-e-motion1.0) to assess the theory of mind in primary school children: observational descriptive study
(JMIR Publications Inc., 2020-04-02) Lázaro Pérez, Esther; Amayra Caro, Imanol; López Paz, Juan Francisco; Martínez, Óscar; Pérez Álvarez, Manuel; Berrocoso Cascallana, Sarah; Al-Rashaida, Mohammad Ali Hussein; García Martín, Maitane; Luna Ovalle, Paula; Pérez Núñez, Paula; Rodríguez Bermejo, Alicia Aurora; Fernández, Paula; Parada Fernández, Pamela; Oliva Macías, Mireia
Background: Given the interactive media characteristics and intrinsically motivating appeal, virtual serious games are often praised for their potential for assessment and treatment. Objective: This study aims to validate and develop normative data for a virtual serious game (Deusto-e-motion1.0) for the evaluation of emotional facial expression recognition and social skills, both of which are components of the theory of mind. Methods: A total of 1236 children took part in the study. The children were classified by age (8-12 years old), gender (males=639, females=597), and educational level (between the third and sixth years of Primary Education). A total of 10 schools from the Basque Country and 20 trained evaluators participated in this study. Results: Differences were found in Deusto-e-motion1.0 scores between groups of children depending on age and gender. Moreover, there was a moderately significant correlation between the emotional recognition scores of Deusto-e-motion1.0 and those of the Feel facial recognition test. Conclusions: Deusto-e-motion1.0 shows concurrent validity with instruments that assess emotional recognition. Results support the adequacy of Deusto-e-motion1.0 in assessing components of the theory of mind in children.

Examinando por Autor "Al-Rashaida, Mohammad Ali Hussein"

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